When support leads to possibility
Kris and Rita Sippel’s daughter Kamrie was born with DiGeorge syndrome and faced serious medical challenges early in life, including heart failure at just three weeks old. DiGeorge syndrome can affect fetal development and the immune system and may lead to developmental delays and learning challenges.
“Many children with her condition pass away within the first three years,” Rita said. “We were thrilled she made it past that.”
As Kamrie grew, she was also diagnosed with autism, ADHD, and learning disabilities including dyslexia, dysgraphia and dyscalculia.
Kamrie received therapies through the Arizona Early Intervention Program (AzEIP). When she turned 3, she began preschool. Her family owns and operates a private preschool and charter school in Gilbert and Queen Creek, where Kamrie attended through eighth grade. As she got older, they noticed she was struggling socially and began exploring other educational options.
During that search, Rita connected with Family Support Specialist Nannette Salasek and learned about the Empowerment Scholarship Account (ESA). With Nannette’s guidance, the family chose a private high school in the East Valley where Kamrie is now a freshman.
“Nannette walked us through the entire ESA process,” Rita said. “This helped us find a different school where Kamrie could thrive.”
Recently, Kamrie attended a school dance and had an amazing time. “We didn’t know if she’d ever have this typical high school experience, but she did,” Rita added.
Kamrie also attended a gathering for individuals with DiGeorge syndrome at Phoenix Children’s Hospital, where participants painted together and connected with others who share the condition. “Seeing other children her age with DiGeorge syndrome was amazing,” Rita said.
With Nannette’s help, Rita also applied for services through the Division of Developmental Disabilities (DDD) and the Arizona Long-Term Care System (ALTCS) to provide additional support as Kamrie gets older.
One of six children, Kamrie also has a brother with autism who inspired her love of writing. She has already written two books and is working on a third, donating a portion of the proceeds to a DiGeorge Foundation. More information about her books is available at kamriesippel.com.
“One night she told me she really wanted to write,” Rita said. “We are witnessing what’s possible when a family and community choose to love and support each other.”
